Before I go forward on this post, I just want to give a huge shout out to my Dad and to my husband for being such wonderful Fathers. Happy Father's Day! This year I didn't do a post for Father's Day so I wanted to make sure I got a shout out to them.
Now, onto the hats!
This summer we finally have a handle on keeping the CIs on Emma's head so she can hear during all (or mostly all, they do occasionally fall off!) waking hours. And while I would gladly keep putting a hat on Emma's head if it was the only way that she would be able to hear, I'm happy to say that we have just recently been able to go Hat Free!
A few things have happened to make it easier to keep the CIs on her head.
- Emma has better head control. Although I know her PTs think it's not so great I'm thrilled with how far she's come with head control and know that it will only continue to get better!
- Her head is not always rubbing against something. She is commando crawling these days and if I lay her down on her back on the floor, she will have rolled over to her belly within seconds so she can get moving. Emma also loves walking in her gait trainer that does not have a head rest for her and her ChildRite chair (the big Bumbo seater she uses) doesn't hit her head, either.
- Emma is using the Nucleus 5 CIs with the compact rechargeable battery and it makes the unit much smaller and easier to keep on her tiny ears
- Our awesome audiology team found some new gear that helps keep the CIs on her head and I am so very grateful for them.
I'm completely delighted that we haven't had to use the pilot cap for the last few weeks! Even at school we are able to tape the magnet on her head and use the ear gear to keep the CIs on her head with only a few touch-ups to the tape each day. And I feel like things have gotten so much easier because, really, keeping CIs on a child with cerebral palsy is not for the faint of heart!
It's wonderful to see Emma - her beautiful blue eyes, her beautiful hair all done up in a matching ponytail, her huge smile - without her hat. I can't even put into words how great it makes me feel. It really is the little things in life that can make us appreciate everything a little bit more.