Today we participated in the 5K run/walk for hearing, Hear We Come, at A.I. DuPont Hospital for Children. Emma is part of the cochlear implant program there and Chris thought this would be a fine time to start running. He trained a bit for the 5K, but in all honestly he could pretty much run the distance without much training as he is pretty fit. His goal was to finish without walking at all and he met that goal while keeping just under a 10min/mile pace. The course was beautiful and did contain a couple of hills, so that explains why his pace was a bit slower than his typical pace at the flat as a pancake course he used to train. Congratulations Chris!
Sunday, May 31, 2009
Friday, May 29, 2009
We've been looking at therapeutic riding and hippotherapy programs (i.e., horse therapy) for Emma for the past couple of months as a fun way for Emma to work on getting better neck and trunk control. We discussed starting this therapy with Emma's doctors and they all agreed that Emma could benefit tremendously from a program and so we set out to find a program that fits our family style. We were lucky to have several programs in our area to choose from and found one that fits us perfectly!
Monday, May 18, 2009
Chris and I have been spending a lot of time at doctor appointments for Emma. We are trying to get her a second CI while she is still young, her brain is plastic, and will get the most benefit from it. Our reasoning is we plan for her to have both ears hearing with a CI, so why not get the second one sooner rather than later. Now that we've become better at keeping one CI on her head, we feel we are ready to take the plunge to get the second. The thing about CIs, though, is that two is not necessarily standard. There are a team of people that determine if Emma is a candidate or not. We've met with Emma's surgeons and found out that the team has agreed to a second CI for Emma! She'll have two ears to hear! We'll get a surgery date after insurance is approved and the surgeons have settled on their schedule for the summer. I'm sure Emma isn't anxiously anticipating the surgery as much as we are, which means she isn't possibly as nervous as we are about another surgery. The fact that she is still too young to understand is quite nice in that we don't have to worry too much about her anxiety over the surgery.
Labels: cochlear implant
Tuesday, May 12, 2009
I've been playing around with my blog a bit and wanted to give it an updated look. I downloaded this template from Blogger Buster and find that it is mostly working for me but I have to get acquainted with how to customize it. Expect a bit more tweaking to happen over the next week or so.
Friday, May 8, 2009
Thursday, May 7, 2009
- Emma is working so hard at sitting. We dusted off her Bumbo this week and were so impressed with how good she sat up and then amazed to see her reach and play with a toy while in sitting position. This is something I've been wanting for so long. This will open up a whole world of play to my little girl!
- Julia now wears her big girl panties to bed! This happened about three weeks ago and she's had only two accidents. Way to go, Julia!
- Emma has been getting more and more vocal (except during her AV sessions, but that's another story!) and said "up" this week!
- Emma grabbed two dominoes and knocked them together just to hear the sound! It's huge for her to hold items in each hand and then to knock them together - for the sound! - well, we're over the moon proud of her!
- Julia and Me-mom made brownies the other day and I was eating one and Emma kept giving me an evil eye for not sharing. So, I put it to her mouth and she took a teeny bite and gave a HUGE grin. She demanded more and so I broke off little bits to give to her so she wouldn't choke. She loved it. It was so nice to see her interested in solid food. Seems like she has Daddy's sweet tooth.
- Julia loves playing with the whiffle ball. She can even hit the ball when we pitch it to her, time after time. It's amazing to see her go. Chris bought her a tee ball stand and she loves playing with it. I think we have a future tee ball player in the making.
Wednesday, May 6, 2009
For the last few months Julia has been making comments that tells me she knows Emma is delayed in her milestones. We've always tried to answer Julia's questions or comments as simply and honestly as possible.
The most recent comment came this week when Julia was commenting on the size of Emma's feet. "Emma's feet are so tiny, Mommy." I told her that yes, they are tiny compared to Julia's feet, but she has a new pair of shoes since they did just grow. We moved on to other conversations, but Julia kept coming back to the conversation around Emma's tiny feet. Finally, she got very thoughtful and said, "When Emma's feet grow she'll be able to walk because they won't be so tiny anymore." So, that was behind the conversation! Emma's not walking yet. I explained to Julia that Emma is not walking yet but it isn't because the size of her feet. It's because her muscles don't work so well. She seemed to understand that and said she wanted to help Emma make her muscles stronger like her and Daddy (I guess Mommy just isn't that strong!). I told her that Emma would like that.
I'm sure there will be more questions to come, but for now it's nice to know that Julia isn't afraid to ask questions or make comments on Emma's progress. And, it's nice to see Julia celebrate as much as me and Chris over all the little milestones that Emma is making on her own time. Of course, Chris and I continue to make a huge deal over Julia's milestones, too, so maybe she has us as role models in showing our enthusiasm :-)
Sunday, May 3, 2009
A.I. duPont Hospital for Children is hosting the 1st Annual Hear We Go 5K Run/Walk on the hospital grounds to benefit clinical and research programs related to hearing loss and hearing conservation in children. Cost is $16 if you pre-register by May 28th, $20 after May 28th. You can register online here.
There is also a Kid's Kiddie K free to kid's 10 and under with registered participant. Refreshments, activities, raffle and education fair will also happen.
Date is Sunday, May 31 at 10am.