Monday, May 31, 2010
I've had online discussions with a few people lately on how to load an adaptive stroller into a minivan without worrying about hurting your back. Emma uses the Kids F.A.S.T. stroller/wheelchair and, while we love it, it became obvious early on that moving it in and out of the van several times a day would not be good for my back since it must weigh at least 65 lbs. So, we bought a suitcase ramp that has been fantastic. Here is a short video of me loading the chair into our minivan. We have Toyota Sienna and I store the rear seats in the down position to make room for all Emma's gear.
Friday, May 28, 2010
Thursday, May 27, 2010
Nap time was always a small bit of time in my day where I could get a lot of things done without feeling guilty about neglecting one of the girls. The things I usually did during this time were quite unglamorous - call insurance companies, follow-up on doctor visits, take care of breakfast dishes, prep for dinner, clean up the house, pay bills, check email, etc. Even though I wasn't doing anything really fun, it was a brief respite in the day and I looked forward to it for a bit of "me" time without any trace of guilt that I should be doing something else.
Monday, May 24, 2010
I don't do well living in a state of flux. I hate when our home is getting work done to it, but I usually love it when the job is completed! I hate the moments leading up to major decisions, but I love when I finally make the decision and get to breathe that sigh of relief that - for better or worse - a decision was made. I just don't like living in a state of flux. And, that's what we've been living in for the past couple of years.
Thursday, May 20, 2010
I've had a bit of an internal feud going on with God lately, and, well, a very strong mother of another child with congenital CMV posted this song to Facebook and I fell in love with it immediately. I guess we all need a reminder sometimes that we are not alone.
Wednesday, May 19, 2010
Monday, May 17, 2010
Sunday, May 16, 2010
Tuesday, May 11, 2010
Sunday, May 9, 2010
Friday, May 7, 2010
I've been taking Emma to the hospital for therapy at least 2x/week the last 18 months. We see many of the same people week after week - parents and grandparents on a similar journey, many who we know by name.
Tuesday, May 4, 2010
There were lots of fun activities for us while we waited for the racers to finish. Julia and Emma participated in the kids' run and each received medals for their achievement. They picked out some hand painted tatoos for themselves, played in the moon bounce and received balloon art from the clown.